I also see them helping developing countries where autistic children are very limited in their supports and potential outcomes. Salary <$25k. In 2013, Autism Speaks CEO's salary was $371,000. Lighting up buildings blue for one day seems the in thing but does it really change societies view about autism? Keith is an accomplished business leader and executive that has a proven track record of success in driving organizations forward. President, Chief Executive Officer and Trustee, RPT Realty. Autism Speaks is a New York City based non-profit organization that raises about $50 million a year. Editors Note: (5/7/2016) The Art of Autism received its nonprofit status this year. I do that all year round not just on one day awareness is great but acceptance is the goal.. Mr. Wargo joins Autism Speaks after a long and successful career in finance on Wall Street. Theres no set number for what a nonprofit CEOs wage should be, but most can agree that a yearly salary of $600,000+ seems excessive. However, Autism Speaks has received much criticism, especially from members of the autism community who urge others not to support the organization. "For those autistic children with language learning differences, the service announcements they hear on subway platforms can be some of the first phrases their minds grab on to." This number represents the median, which is the midpoint of the ranges from our proprietary Total Pay Estimate model and based on salaries collected from our users. Since joining the organization, he has delivered seamless financial and operational support which has ensured ongoing growth and sustainability, as well as furthered its mission and expanded impact. $451,121: Angela Geiger, President (beginning February, 2016), $365,627: Robert H Ring, Former CSO (through January, 2016), $280,735: Lisa Goring, Chief Program and Marketing Officer, $277,794: Andy Shih, SP Public Health Research, $262,284: Peter Morton, VP Corporate Development, $243,724: Karen Robinson, CFO (beginning January, 2016), $233,843: Elizabeth Feld, Former President (through February, 2016), $220,633: Paul Wang, SVP, Medical Research (through November, 2016), $210,661: Amy Schoeman, Chief HR Officer, $204,556: John Gruber, EVP Finance and Admin (through January, 2016), $204,436: Donna Murray, VP Science Clinical Programs. Autism Speaks might sound appealing to individuals and families seeking to raise awareness or receive support. Get the inside scoop on jobs, salaries, top office locations, and CEO insights. Autism is no great burden on a nation in finacial terms of support. From https://projects.propublica.org/nonprofits. A combination of genetic and environmental factors influences the development of autism, and autism often is accompanied by medical issues such as GI disorders, seizures and sleep disturbances. A simple apology written on the FAQ section of their website and a promise of change cant undo the immense damage that Autism Speaks horrific ad did. [13] The organization was established with a $25 million donation from The Home Depotfounder Bernie Marcus, who sat on its board of directors for some years. In the commercial, Autism states, I work faster than pediatric aids, cancer, and diabetes combined and if youre happily married, I will make sure that your marriage fails. To find resources, join an event or make a donation, go to www.AutismSpeaks.org. Employee compensation accounted for more than a quarter of Autism Speaks income for the year. Still, they do not speak for me. The most 13 highly compensated individuals were: As illustrated above, $3.5 million was provided in compensation to the 13 individuals above, 7 of whom were men and 6 were women. On the surface, its a nonprofit organization that seeks to provide support for individuals with autism and their families, raise awareness for autism, and further research on autism and its causes, but a deeper look takes a troubling turn. With hundreds of postsecondary programs for students with intellectual disabilities available, a newly formed accrediting agency is set to help families determine which ones are of the highest quality. What is it about autism and the intrinsic features within this neuro-diverse grouping , that so threatens this small group of influencial people at the very core of this organisation. There are many, many reasons us more mainstream stratta in the community who embrace our sons and daughters autism vehemently dislike much about this organization. Improved health insurance benefits for autism through the Federal Employees Health Benefits Program. They are a magnet for Hollywood celebrities and rock stars. Rather than focusing on raising awareness and advocating for the acceptance of autism in society, Autism Speaks treats it like a disease that needs to be cured or eradicated. Paid Staff Size. Read the API documentation . Mr. Wargos appointment is effective October 15, 2021, and follows the Board of Directors announcement earlier this year that Angela Timashenka Geiger would be stepping down from her position after a five-year tenure. Indeed. If this organization has filed an amended return, it may not be reflected in the data below. to let us know you're having trouble. Postsecondary Programs For Students With Disabilities Begin Accreditation Process, Beaches Resorts Grows Program For Guests On The Spectrum, Shocking Number Of Kids With Autism Kicked Out Of Day Care, Study Finds, Woman Gets Hired For Job Then Position Is Pulled Because Of Her Disability, Lawsuit Says, Ironman Adds Intellectual Disability Division, Residency Program Aims To Ease Shortage Of Special Education Teachers, In First, CDC Issues Data On Teens With Autism, Disability Community Worries Lack Of Services Is Driving Desperate Acts, Ed Department Earmarks $224 Million To Improve Transition For Students With Disabilities, Teacher Suspended After Holding 4-Year-Old With ASD Upside Down By His Ankles, Family Says, The Premier Source for Developmental Disability News, Sign up for Disability Scoop's free email newsletter, Open Rank Faculty Appointment in Disability Policy, https://www.disabilityscoop.com/2009/09/10/autism-speaks-pay/4893/. granted to the Center for Autism and the Developing Brain at New York Presbyterian. This article exposes the AS emphasis on building awareness but limiting that awareness to the AS perspective. If you have used our data or site in your research or reporting, add credit and a link to Nonprofit Explorer in your story or publication and let us know. Jennifer Schell Podoll leads the field team and event strategy as the SVP of Constituent Engagement. Prior to Autism Speaks, she served as Chief Development Officer at Guiding Eyes for The Blind, where she was responsible for leading marketing and PR as well as all revenue streams: major gifts, direct response, planned giving, digital, corporate and foundation. Although Autism Speaks has not prioritized services with a practical impact for families and individuals in its budget, its rates of executive pay are the highest in the autism world: in 2019, between salary and bonuses Autism Speaks paid their CEO nearly $1 million. Taxable trusts and private foundations that are required to file a form 990PF are also included. I support ASAN, GRASP, and the Golden Hat Foundation because for one they have a more loving tone in their advertisements. It cuts those parents off from new information, our autistic perspective. As a child you have others to take care of you as an adult with autism you are often all on your own and the only help you can get is from family or friends who are able or willing to help, Maranda Russell, Gee Vero, from Germany writes: In Germany lots of autistic people and parents of autistics think Autism Speaks is the answer to all their prayers. They went on to explain Dawsons cross-country moving expenses by saying that her presence on the east coast makes her more accessible to Autism Speaks offices, three of its science divisions and government health agencies in Washington, D.C. Arent you supposed to be helping people on the autism spectrum? Autistic people know how to help Autistic people, Kelly Green writes. Autism Speaks spends the majority of the money they raise in advertising. los inconvenientes que esto te pueda causar. On Twitter, Autism Speaks recent #MSSNG hashtag as a platform for genome research was responded with by #NOTMSSNG and #ActuallyAutistic hashtags by autism advocates. Sign up for Disability Scoop's free email newsletter to get the latest developmental disability news sent straight to your inbox. Tax forms have shown that Autism Speaks spends a significantly low amount of its funds on actually providing resources for and aiding those with autism and their families. She previously served as VP of March for Babies at March of Dimes, leading their single-largest revenue stream, and spent more than 12 years at the American Cancer Society in a variety of positions, including SVP of Communications & Marketing, EVP of Greater NY and VP, Community Engagement. . Theres no one answer for what is appropriate compensation, says Suzanne Coffman, director of communications for Guidestar, which operates a database of nonprofit organizations financial information. Can it be cured or should it be cured? Mr. Wargo's appointment is effective October 15, 2021, and follows the Board of Directors . The average estimated annual salary, including base and bonus, at Autism Speaks is $118,202, or $56 per hour, while the estimated median salary is $129,445, or $62 per hour. Were not an epidemic. Im in my forties. People with autism and the family and friends who stand alongside them are . He assumed the role of senior vice president of advocacy in 2018 and leads Autism Speaks advocacy efforts. However, its clear that, under the surface, they havent changed much. Nous sommes dsols pour la gne occasionne. If you have a piece of art youd like to share, please email me at theartofautism @ gmail.com. Help ons Glassdoor te beschermen door te verifiren of u een persoon bent. More recently, Mr. Wargo became an owner of Monarch Cypress, an industry-leading amenity manufacturer and supplier, where one of the companys missions is to employ autistic individuals. Some people who talked to me wished to remain anonymous. There is still much to accomplish but I am confident that Keith is the right individual to get the job done and I am grateful to leave Autism Speaks in such capable hands.. Nonprofit Explorer includes summary data for nonprofit tax returns and full Form 990 documents, in both PDF and digital formats. I am looking forward to building on the phenomenal work that Angela Geiger and the team have already accomplished and to making a positive and profound impact. His passion for our cause and his deeply rooted commitment to fulfilling our broad and ambitious mission make him the ideal person to lead our team forward and continue our important work on behalf of the millions impacted by autism around the world. Autism Speaks is dedicated to promoting solutions, across the spectrum and throughout the life span, for the needs of individuals with autism and their families. Over the course of his long and successful tenure, he developed a proven track record of building effective teams, partnering with an array of stakeholders to tackle complex issues and helping to grow and scale multifaceted businesses across multiple industry sectors. Please enable Cookies and reload the page. Prior to joining Autism Speaks, Joe was the Chief Operating Officer at United Way of Metro Chicago. ProPublica posts new tax forms as they are released by the IRS. Finding a cure is greatly needed for those on the severe end of the spectrum, and AS gives tons of money toward research in finding cause, treatments and yes finding a cure. If you want to do an in-depth view please ask those who are raising a severe child/adultHigh functioning autistics wear it like a badge of honor great good for them, have pride in who you are, but those on the severe side that have to wear head gear to prevent skull fractures from banging their head, unable to communicate, cant function independently and are living a life day to day trapped in a body they cant control is NOT the same. Liz Becker, parent. Autism is not a disease. IS AS open to adjusting special interests of their board members and cleaning up favoritism and the clear corruption of their board? These audits are copied from the Federal Audit Clearinghouse. The major reason Autism Speaks has received high-level criticism is because of how it views and frames autism. He was instrumental in the cloning of a family of small GTPases involved in cell-cycle control and nuclear transport and he holds three patents on nucleic acids-based diagnostics and therapeutics. Nonprofit salaries range wildly, experts say, but must be based on the salaries of others in similar positions at comparable organizations in order to meet Internal Revenue Service standards. para informarnos de que tienes problemas. The organization spent about as much on entertainment, travel, and catering as they did on grants for family services. I asked them for help because I am losing my home with 2 spectrum kids they never even replied back to my application, Angela McDonough. He spent nearly 30-years in leadership roles at leading global financial institutions, including Goldman Sachs, Deutsche Bank, BMO Capital Markets and Mizuho Securities where he built effective teams and partnered with a broad array of stakeholders to identify innovative ways to enhance and scale platforms while tackling complex challenges. As President and CEO of Make-A-Wish Foundation Los Angeles, she was responsible for the operations, fundraising, and marketing to support the wishes of children with life-threatening medical conditions in Southern California. Have a tip we should know? 8 Autism Speaks Ceo jobs. Autism Speaks spent over $52 million on advertising. The CEO called me and asked for a painting as a donation. What is also very odd is that the organization is titled Autism Speaks, but it has a history of not letting autism speak. Aydanos a proteger Glassdoor y demustranos que eres una persona real. Autistic people have internal gifts and abilities that need to be pulled out and encouraged, Debbie Denenburg, Im not a burden to cure most of it [the money for research] goes into finding a cause, prevention, and a cure. They exploit and use Autism as a means to garner sympathy and donations from family and friends . In the year before joining Autism Speaks, Keith combined his business expertise and personal values when he became an owner of Monarch Cypress, an industry-leading amenity manufacturer and supplier with a mission to employ autistic individuals. Please check your email for instructions to complete your sign-up. Prior to United Way, Joe spent 15-years at National City Bank (now PNC) where he led a number of national operating units, participated in enterprise-wide integration projects, centralized operating units and served on bank acquisition teams. Autism affects an estimated 1 in 54 children. [CDATA[ $('input, textarea').placeholder(); // ]]>. Not what makes the parent comfortable. Compare pay for popular roles and read about the team's work-life balance. Only 4% of their huge budget goes towards actually helping individuals with autism and their families with their family grants. For me the overriding message of this article is ASs over-emphasis on spreading their concept of what autism is. Mr. Wargo's appointment is effective October 15, 2021, and follows the Board of Directors' announcement earlier this year that Angela Timashenka Geiger would be stepping down from her position after a five-year tenure. We are truly thankful, for the services they made available for us, when we had nowhere else to go, Jennifer Gray. He and his wife Mona have two adult sons, one of whom is on the autism spectrum. Katie Wright, the Wrights daughter, says her parents could have had a nice retirement but instead decided to bring awareness to autism. Prior to joining Autism Speaks, Lynn was the director of financial operations at Wenner Media LLC, where she managed the accounting, finance and technology teams for nearly 10 years. Now, a lot of their research is focused on developing prenatal testing, so autism can be detected in the womb and the pregnancy terminated, and furthering their controversial Applied Behavior Analysis (ABA) therapy. The Art of Autism accepts many art forms, including blog posts, art, poetry, video submissions and requests for book and film reviews. The AS video with the Satanic over-voice is especially pernicious to me. Uncover why Autism Speaks is the best company for you. Importantly, they have witnessed the positive impact that Autism Speaks has on enhancing the lives of people with autism and their families through research, advocacy, supports and services. They have personally witnessed the positive impact that Autism Speaks has on enhancing the lives of people with autism and their families through research, advocacy, supports and services. Since joining Autism Speaks, Dr. Shih has led important advancements toward the organizations mission, including the development of several large international research consortia that delivered high impact scientific outcomes for the community. 2023 Autism Speaks Inc.501(c)(3) organization, EIN: 20-2329938. I interviewed board member Dr. Stephen Shore about his role on the Autism Speaks board a few months ago. ", Angela Timashenka Geiger, former president and CEO, Autism Speaks, said, "Keith's personal connection to autism as well as his business background make him an excellent choice to lead Autism Speaks going forward. The organizations original mission statement, Autistic Self Advocacy Network (ASAN) reported that, Judy Blume Clarifies That She's Pro-Trans Rights, Says 'Sunday Times' Quoted Her Out of Context, Artist Hellbent on 'Ruining' Popular Songs Accidentally Makes a Bop From Miley Cyrus Remix, Not All Scenes Need Sex To Be Sexy and This Viral Tweet Just Proved It, Rather Than Responding To Criticism, David Choe Is Filing DMCA Takedowns of Videos Calling Himself a Successful Rapist, Succession Just Showed Us Who Is (and Always Has Been) the Next Logan Roy, Audience Reactions to Beau Is Afraid Are as Surreal as the Movie Itself. Salary: $60,000 Joni and Friends Avg. They just need to be gently educated about the problems with Autism Speaks and guided toward raising money for better organizations, like the Autism Self-Advocacy Network, AANE, and local groups, Steve Silberman, I think the best thing we can do for others is to bring attention to the issues with Autism Speaks and provide a rational concrete explanation for why they are not the best choice. Numbers dont lie. Wenn Postscript: The day after I wrote this piece, Bob Wright announced he was stepping down as Chairman of the Board. Very little of their research is dedicated to helping or improving the lives of those with autism. In countries where children are literally locked away in secret rooms or kept in outdoor sheds, awareness is desperately needed. Additionally, the organization continues to lack autistic voices on its board, spends its funds questionably, and continues to adhere to the ideals of its founders, which is that autism is a disease. Autism Speaks finances this program at 13 other facilities where the same services are provided. Three employees received severance payments (included above): The IRS Form 990 (2016) also reports the Advertising Council (which has common board members) was compensated $373,576 for an education campaign. The 100-Day Kit was meant to give direction and advice to parents of children who have been recently diagnosed with autism. The least common salary at Autism Speaks is $100k-200k. Aydanos a proteger Glassdoor verificando que eres una persona real. I raised a child on the spectrum and he has brought a thousand times more light and wisdom to my life than the challenges he, his dad and I shared in overcoming those challenges! To find resources, join an event or make a donation, go towww.AutismSpeaks.org. I agree with the decisions made by that mom and her son. 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